Wednesday, 18 November 2009

NEW GLUE EAR WEBSITE !!

I have been working on a new site for a while now. I wanted to put it up because there appears to be nothing in depth about this condition, for parents in particular, to refer to when trying to find out about this condition. Since my son was first diagnosed when he was three he has had three grommets insertions and his tonsilles and adenoids removed. Though the glue itself can no longer build up he continues to suffer ear infections on a regular basis, roughly six a year. He is affected by pain, recurrent hearing loss and these have cause a number of behavioral issues and speech and language delay. The language delay inevitably has caused communication problems. The problems that my son has had have brought me in contact with many professionals and over time i have done extensive research on the subject. My sad conclusion is that there is a severe lack of information, advice or appropriate help for parents wishing to get help for their children and wishing to understand how the varying degrees of glue ear affect children.
There is no in depth site on the web that tackles Glue Ear thoroughly or provides a resource and support for parents. So i decided to create one. It is in it's infancy so check it out and keep in touch with it as it is set to grow quickly and become an interactive in depth resource. Find The Campaign for The Awareness of Glue Ear (CAGE) at www.glueear.org.uk

Thursday, 21 May 2009

Glue Ear Awareness.

WHY GLUE EAR AWARENESS? Category: Life
I have set out on my mission to bring about heightened awareness of Glue Ear. After battling with the health and education system for the last four years to try and get appropriate help for my son, things are quietening down at last. But the effects on him, not only of the condition, but of lack of correct intervention and treatment will be with him for a long time. There is no appropriate program of help for children with glue ear and professionals try to label the children as on the autistic spectrum either out of ignorance or in order to get some help, a kind of help that is totally irrelevent to the child's needs.As the years have gone by i have come across many parents in similar situations to ours, scrabbling around for the little information that is out there. I have come to realise that it was pointless expecting any professional to tell me how to help my son. I expected them to give me the answers, but they knew less than i did. His repeated bouts of ear infections and glue ear since being a baby until the present day (age five and a half) have resulted in hearing problems. He has never learned to listen and so has concentration problems. His articulation is poor as he has learned to talk as he hears. His resulting speach and language delay have caused communication problems, frustration, anxiety and behaviour problems. Through the years i have met many professionals and learned little of use from most of them. All i have learned i have researched myself. I consider myself the professional on my son and no one else. This is why i am working to raise awareness of this little understood and highly underestimated medical condition that affects a huge amount of children. It is for all those parents out there who are going through what we have been through.